The American Porphyria Foundation: News

Channel: The American Porphyria Foundation: News

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Attention EPP Patients and Caregivers!

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May 10, 2017, 10:00 am

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Important EPP Survey

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May 16, 2017, 10:00 am

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Let's Show the FDA the Future of EPP....Our Children!

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May 17, 2017, 10:00 am

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Reminder - EPP Community

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May 19, 2017, 10:00 am

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Last Call for Photos!

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May 30, 2017, 10:00 am

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Medical Moment - Important News

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June 2, 2017, 10:00 am

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PORPHYRIA POST

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June 6, 2017, 10:00 am

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EPP DELAYED DIAGNOSIS SURVEY

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June 7, 2017, 10:00 am

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2017 International Congress of Porphyrins and Porphyria in Bordeaux, France

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June 8, 2017, 10:00 am

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Big News: EPP, Advisory Committee, New EPP Publication

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June 15, 2017, 10:00 am

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Patient Education Meeting and more...

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June 21, 2017, 10:00 am

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Recordati Rare Diseases is launching a new 350mg dosage strength of Panhematin

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July 5, 2017, 12:35 pm

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FIGHT THE STIGMA! CAMPAIGN

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July 12, 2017, 11:07 am

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Access to Care Toolkit

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July 19, 2017, 10:00 am

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APF Membership

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July 27, 2017, 10:00 am

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NEW RESEARCH STUDY FOR PORPHYRIA CUTANEA TARDA (PCT)

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August 4, 2017, 10:00 am

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Patient Education meeting on Saturday, September 16, 2017 in Anaheim, CA

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August 15, 2017, 10:00 am

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Research Volunteers Needed

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August 24, 2017, 10:00 am

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Office Closed due to Hurricane Harvey

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August 28, 2017, 10:00 am

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Hurricane Harvey and Office Closure Update

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August 30, 2017, 10:46 am

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